We are proud of our Pacesetters! Click photo of one prominent person, to read her(his) statement.

HSP, that is the hereditary spastic Spinalparalyse. A rare and incurable genetic disease oftenbegins in childhood and steadily worsened. Defects in the nerve cells complicate walking and make often impossible.

We support people since 1998 and promote HSP research. On our website for information to the disease, contacts, therapies, the level of research and how you can help us work for those affected.