HSP, that is the hereditary spastic Spinalparalyse. A rare and incurable genetic disease oftenbegins in childhood and steadily worsened. Defects in the nerve cells complicate walking and make often impossible.

We support people since 1998 and promote HSP research. On our website for information to the disease, contacts, therapies, the level of research and how you can help us work for those affected.

Please watch our Video about HSP and TWS (2011), in German

 

 

Current news

Our next symposium in Bochum on March 31st

[Translate to Englisch:] Program is online

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Famous Rock Musicians donate 5.000 €

Benefit Concert in Münster´s Jovel was a great success for TWS

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Dancing and Helping!

The TWS celebrates the Rare Disease Day!

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donations via purchasing

gooding

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Donation form KIESER Training

5 € for 1 pull up

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Symposium Paris

June 2016

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Advanced scholarship 2016

deadline

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Presentation booth DGN

again: TWS is present

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Symposium 2017

] again guest of the Human Genetic society congress

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regular member of Eurordis

TWS active in Europe

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120.000€

new offer for researchers

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new project may 2016

Team Cahir o'Kane Cambridge

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New research project

in Aachen

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therapy possiblity

power training

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Symposium 2016

Duesseldorf

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new HSP surgery

in Freiburg

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Radio performance rare diseases

please refer to the Geraman page

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purchase

and donate

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Shop-News

it makes sense to have a look

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