Best Clinical Practice Guidelines and Framework of Future Cohort Studies in HSP
on November 17 and 18, 2014, internationally known specialists meet at the TWS in Münster to agree common policies for cohort studies with HSP under practitioners.
Led by Prof. Dr. L. Schoels, Tuebingen
Those interested can register with the TWS.
In addition, we point out that on the following day - 19.11.2015 a workshop on the topic"10 years consulting experience HSP" will be performed. Of course also the participants of this workshop are welcome. See...
Day 1: How to assess HSP
13:00 Get together
13:30 How to define onset of HSP? Which are the first symptoms?
14:15 How to assess severity of HSP? SPRS and other rating scales
15:00 Phenotypical spectrum of HSP – which signs and symptoms should be included into a registry?
15:45 Coffee break
16:15 Electrophysiological assessment: Standards and quantification
17:00 Neuroimaging protocols: Standards and quantification
17:45 Movement analysis: HSP characteristics and quantification
18:15 Preclinical stages of HSP
Day 2: Working groups for HSP standards and guidelines
09:00 Diagnostic criteria and standardized diagnostic work-up
09:45 Web-based data registry
10:30 Coffee break
11:15 Genetic diagnostics in HSP
12:00 Biosampling standards
12:45 End of Meeting