Fortunately there are as well as on national basis as international many associations, who are working together as HSP self-support groups. They all support in giving sufferers the feeling not to be alone. They try to help them in daily problems with their life and they announce to the researches as well to the Tom Wahlig Foundation: "We are here".
HSP Research Foundation Australien
Associación Espanola de Paraparesia Espástica Familiar
Association Struempell-Lorrain Frankreich
Nors forening for Arvelig- Sastik Paraparese/-Ataski
(union of the european HSP - self support groups)