A sensible life with HSP and possibly therapy can not start until you have no diagnosis. If early onset or later, after diagnosis life will change for you and your family. Even rehablitation can not start before the exact diagnosis.
To help people for this first step, the Tom Wahlig Foundation arranged surgeries in cooperation with clinics all over Germany and Austria. Here the sufferers are accepted as human beeings from especially educated neurologists. To meet one of them, can be the first step to accept the disease, to live with it and to attempt to any chance for a better life.
Further the Tom Wahlig Foundation was the "catalyst" to create a self support group, which is since that the ideal topic centre for every days life. This group works perfect and can be contacted by everybody