The objectives of our Foundation are to provide information and support for HSP sufferers.
We do this by advancing research by funding projects, promoting networks of researchers international and generally increasing awareness of HSP.
To this end, Dr Tom Wahlig from Münster/Westfalen, whose son Henry has suffered from HSP since childhood, set up the Foundation named after him in 1998.
The Foundation is a non-profit organization under the umbrella of the Ernst Abbe Foundation Jena, but independently decides its activities.
There is also a separate support group (we work together pretty well).