Member of the German Parlament and former authorized represetative for human rights in Germany.
Every individual has the right to the best possible medical care. It makes no difference whether someone suffers from a rare, or a known disease. Unfortunately, sufferers of rare diseases often make the experience that the research finds little support, because it is for pharmaceutical companies ´ not so worthwhile ' appears. I don't think so, and so I am pleased to support the Foundation as a patron."