Member of the German Parliament and former government commissioner for the human rights policy and humanitarian aid in Germany.

"Every individual has the right to the best possible medical care. It makes no difference whether someone suffers from a rare, or a known disease. Unfortunately, sufferers of rare diseases often make the experience that the research finds little support, because it is ´not so worthwhile' for pharmaceutical companies. I disagree, and so I am pleased to support the Foundation as a patron."