An Illness with many questions
HSP: Theese 3 letters, which can mean a wheeldrive life for this person. About 2000- 3000 people are sufferes in Germany. We have no better numbers, because the disease is still "unknown".
Most doctors don't know the symptoms of HSP, because they are similar to MS oder ALS. Therefore are false diagnoses very often. It is estimated that in Germany are more than 1000 persons with false diagnoses, as well as people with other diseases diagnosed as HSP as others with HSP diagnosed different.
In the following pages you will find general understandable informations about HSP, regarding the history, genetics, therapy and similar.