new since 10/2015 Christoph Straesser

 Strässer: Every individual has the right to the best possible medical care. It makes no difference whether someone suffers from a rare, or a known disease. Unfortunately, sufferers of rare diseases often make the experience that the research finds little support, because it is for pharmaceutical companies not so worthwhile. I don't think so, and so I am pleased to support the Foundation as a patron."