Febr.26th 2010

Day of rare diseases

 

 

 

a day on which our condition is to come along with many other "rare" in the Focus. A day for patients and researchers.

Many activities come from the <link typo3 achse-e-v.8.0.html external-link-new-window external link in new>ACHSE and of course our Self-Support-group .

We participate with a speech in Hannover Orphanet

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