our self support group arranged many actions to remind people on HSP and to show "hope".
The awarding of the "Eva-Kuise-Köhler" orphan disease award (50.000 €) was another highlight of this day. We were invited by the wive of our "Bundespräsident" to join the ceremony for Prof. Bruckner-Tudeman from Freiburg, who got the prize for her extraordinary results in research for the orphan skin disease called EB.