Workshop standardization

a meeting of European experts of HSP in Münste . Here, it was clear that the HSP longitudinal gradient data still largely missing. The participants agreed with the aim of bringing together the world's largest cohort of HSP patients a far-reaching harmonization and standardization of clinical, neurophysiological, genetic and imaging studies, as well as an as much as possible merging of the registries in pseudonymised form. In a joint, European research project proposal are essential data to both clinical and imaging disease progression level are developed.