News



Our 20th symposium will take place on November 26th, 2021 at the University Hospital Essen. The day before, the members of the TreatHSP network meet…

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Donations for Walking Challenge will be used for patient-centered projects

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Prize winners from Great Britain and the USA

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The 19th TWS Symposium will not take place in Baden Baden, but virtually via livestream

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New date planned for autumn 2020

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all details on the German page

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The TWS is again funding projects working on HSP and other neurodegenerative diseases. We are welcoming applications from researches all over the…

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International, highly scientific and familiar

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News about public work and funding activities of TWS

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Politician Sybille Benning and mayor Markus Lewe as supporters

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The program of our next symposium is online now

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Exchange of ideas with TWS and Spastic Paraplegia Foundation, INC.

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TWS presents its work in Braunlage from April 20th - 22th

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We wish you - our friends and supporters - wonderful holidays! After a short break we will be back in office on April 9th.

 

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Wonderful meeting of the TWS family

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Bilingual magazine replaces annual report

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Visit our info booth in Essen on February 24th

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An Austrian family helps HSP patients

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Dr. Baas and his team work on a new mouse model

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New standards of funding activities for research in HSPs

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Familiar atmosphere on a high scientific level

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Benefit Concert in Münster´s Jovel was a great success for TWS

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The TWS celebrates the Rare Disease Day!

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] again guest of the Human Genetic society congress

 

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new offer for researchers

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Team Cahir o'Kane Cambridge

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please refer to the Geraman page

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it makes sense to have a look

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march 18th 2016 in Duesseldorf

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Düsseldorf with DGKN

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Donations runners ran around 3,000 euros for the TWS

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a run for peole, who can't run..

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since some years we sell some products to "fresh up" our donations

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DGKN congress 2015 in Tübingen

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has been published few days ago

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In Paris they are modelling mice models for SPG11 and SPG49

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the leading director of the State Theater Kassel

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Supported by the Tom Wahlig Foundation took place on 17th and 18th November 2014

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November 19th first time our workshop HSP consultations was held...

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Our new teaching DVD is ready

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a new idea for collecting Money for HSP

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we could join the anniversary

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TWS joined the congress

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the self support group visiting TWS

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6 pages Information about TWS

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Good News for physiotherapy

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they call it now Translarna ®™and..

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in Berlin a great success

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in Cambridge a new HSP research project

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the 28th of February ist all over Europe known under this name

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to all our friends and sponsors

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the registration is open

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TWS joined the congress with an information booth

 

 

 

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during the Paris- Symposium

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the donation of Cookbooks

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unser Benefizspiel in Telgte 30.6.2013

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please refer to the German page

 

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adavanced scholarship 2013

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Day of rare diseases

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has a name now and a preliminary program

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Sport activities and interview with Henry Wahlig at university in Münster

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no more pacesetter

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we got five very interesting applications..

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Matthias Bongard the well known..

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wil be held at Dresden in march 2013

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the Foundation has again an informaton booth during the International Neurology Conference at Hamburg

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Roland Kaiser got the NRW award

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our second "advanced scholarship" started

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our pacesetter INGRID KLIMKE with her team

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pre-information about the plan of our foundation

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we got from Allen Bernard Columbus, Ohio, USA

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the German Cabinet has introduced a Bill...

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a new center for orphan diseases was installed..

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success for the musical

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Am 29. Februar wird der Tag der Seltenen Erkrankungen begangen

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our 11th symposium will be performed on march 16th in Cologne.

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On Dec. 28th the daily newspaper "Die Welt" came with an important supplement

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a little ceremony was the delivery of a check

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in the Hannover medical school

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Uwe Seeler our pacesetter celebrated his 75th birthday

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annual meeting from october 27th up to 29th

 

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"PaceSetter" Roland Kaiser was reading for TWS

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sceptical report from Rudolf Jaenisch

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TWS will be present on DGN with an information booth

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it's time to speak about our 11th symposium

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PHASE 2 DATA IN NONSENSE MUTATION CYSTIC FIBROSIS PUBLISHED IN THE EUROPEAN RESPIRATORY JOURNAL

 

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Neuroscientists explore nerve diseases

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the spanish self support group will performa another international HSP symposium

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a sustainable financial support we got "post festum"...

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new surgery-hours in Wiesbaden

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got the German "Solidarfonds" award

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as teacher for research

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On april 1st TWS participated Thuringian Foundation Day 3 in Erfurt,where various foundations of the free State presented themselves. Also the TWS is…

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from the 10th TWS Symposium

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on march 18th at Congress center Muenster "roter Saal"

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please listen WDR5

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the german program RTL broadcasts on 28th of Feb. 2011

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Symposium on the day of rare diseases

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our annual report is published

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Prof. Dr. Christian Hübner (Human genetics)

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Something regarding the diagnosis of rare diseases

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the time is going on, march 18th comes nearer..

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great success instead of snow storm

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Burkhard Spinnen. the author from Muenster, reads parts of his book

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splendid come back of our pacesetter

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we are proud, to announce our new paceSetter Prof. Dr. Dr. h.c. mult. Heribert Meffert, Münster.

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Ataluren Slows the Loss of Walking Ability in Patients

with Nonsense Mutation Duchenne/Becker Muscular Dystrophy

 

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Tom Wahlig visited La Jolla

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during the day of rare diseases Dr. Wahlig was interviewed

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pharamceutical industry takes care about rare diseases

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as known our 10th (anniversary) symposium will be held at Muenster...

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MPI researcher from Dresden

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stemcell- researcher from Münster invent"Turbolader"

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our 28th promoted project started...

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a new pacesetter, a prominent researcher

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successfull meeting in Halle/Saale

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on Febr 28th we had some publications about our foundation

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PTC THERAPEUTICS AND GENZYME CORPORATION ANNOUNCE PRELIMINARY RESULTS FROM THE PHASE 2B CLINICAL TRIAL OF ATALUREN FOR NONSENSE MUTATION…

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our pacesetter Ingrid Klimke got a baby

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our pacemaker, Vicar General Diocese of Basle, even HSP concerned

 

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rare diseases (orphan diseases) was opened in Tuebingen

 

 

 

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PTC THERAPEUTICS ANNOUNCES ADDITIONAL STUDY

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Day of rare diseases

 

 

 

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for many donations

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rare art helps rare disease

 

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Prof. Th Deufel in the Thuringian Ministry of Culture

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SIX-MINUTE WALK TEST AS AN OUTCOME MEASURE IN DUCHENNE MUSCULAR DYSTROPHY

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our HSP consultation hours are beeing revised

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PHASE 2 CLINICAL TRIAL OF

 

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we are happy to announce the winner

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(PTC) today announced the initiation of a Phase 3

 

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our Spanish friends had the courage

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after the charity soccer game we had an auction for the jerseys

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LVM Insurances in Muenster

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more than 2000 visitors and mor than 40 press reports

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our beneficary game Vfl Bochum against RW. Ahlen (2:1) in brilliant sunshine...

 

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Beneficary game: VfL Bochum against RW Ahlen for TWS

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Great games throw their shadows!

 

 

 

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Our PaceSetter Roland Kaiser

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in occasion of the day of orphan diseases

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during a little ceremony

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we are happy to pronounce..

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please read the official <link stipendium tws_stipendium.pdf external-link-new-window external link in new>announcement

Please, forward this information to colleagues of you who might be interested to apply. Additionally, I would…

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has now name: ATALUREN

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Beeing 10 Years old we were very active in 2008.

We think to be committed te report some more.

Details.

 

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TWS promotes a new HSP research project

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The German self support group created a brochure HSP

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promotes research in orphan diseases

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PTC THERAPEUTICS ANNOUNCES

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German soccer idol encourages TWS

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from today you can watch the DGF

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Tom Wahlig was honored

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in Hamburg new person

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PTC introduces PTC124 at Marseille conference

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about 400 visitors saw the HSP benefical game in Muenster.

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Henry Wahlig had an interview regarding HSP

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Uwe Seeler the German soccer idol writes an open letter to Henry

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Muenster Mammuts play a game as benefit for us and our HSP research promoting.

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PTC 124 last test-phase?

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HSP- Surgery in Jena new

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Our symposium 2008 a great success

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German Lufthansa informs how to treat those air passegers

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having many e-mails with proposals for names

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Philippe Hanriat from the French group reminds of Madrid and recommends our next symposium at Magdeburg

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to desingn our homepage more usere friendly..

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Our old TOMIS had no secondary growth, there was no mother...

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our patron, W.M. Catenhusen has been elected for the German Ethic- Committee

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the product PTC124 seems to make progress

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our symposium 2008 will be sponsored by WYETH

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The USA HSP foundation awarded the prizes

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the film about HSP

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the clinical trial regarding treadmill effective

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holidays for parents of disabled children

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positve report from a patient

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PTC 124 further test-phase

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all lectures online

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Great success: The Spanish HSP group perfomed an international meeting, to improve the cooperation for HSP in Europe and USA.

 

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FSP-INFO out of order soon

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The following public ation shows an actual survey of the HSP research

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Rental- cars for disabled people

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